YourSoJelly
Well-known Member
Cavy Slave
- Joined
- Aug 13, 2012
- Posts
- 2,476
- Joined
- Aug 13, 2012
- Messages
- 2,476
This has inspired me to make a facebook group about this i think. If you want to join, let me know!
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That's exactly my point... "labels"... I think that's what causes the most problems and discrimination
Along the same lines as this, it's ridiculous how some of the diagnosis's can receive help while others can't.
My son was diagnosed with PDD-NOS at age 3, under this, he could qualify for services through the school district but not from the government and not SSI because he was not "autistic". At age 6, they legally changed it to a diagnosis of Autism, and immediately he was qualified for SSI and all government services. Those 3 years in between, same child, same delays, could have made a HUGE difference in his life if he had the services available to him as he does now. I think it's completely unfair how just because you may not fall under the Autism umbrella, you can not receive some of the same services while you have many of the same challenges. Many of the times, and definitely in my son's case, his academic and language ability were impaired because of his social and behavioral issues.
What I found interesting was many times I've heard of psychiatrist's diagnosing children as being Autistic, although they may not have all the markers, just so they can receive the benefits that a child with Asperger's or PDD may not get.
OH and to top it off, I want to be a midwife, which is wierd. Apparently I just want to stare at lady bits all day -.-
sometimes people get way under my skin.
I think that that would be cool. I'm gonna be a vet because people pain... Not my thing.
It's so difficult with these issues because my autistic child has exact opposite markers then another which will have some markers but none of the others for another child. You are right, you really do have to do the research and become your child's best advocate. I went through all of our options and choices and thankfully for us, we've had a good support system through his school and through our offices we work with. I've never had issues with his IEP or having it enforced thankfully but I"ve heard horror stories of other parents who can't get anything done for their child. We went with the route of going through the government because here in AZ, it really gave us the best options for a wide array of services. Private insurance wouldn't cover everything he needed without huge co-pays and out of pocket costs plus the SSI is helping to cover costs of me having to be a stay at home mother with him. He won't qualify for any local after school programs and I'm extremely picky about who watches him since he still has a language delay at his current age, 7 and he can't express to me or even know what is right and wrong physical contact.
it's tough and I always love hearing how other parents advocate for their children. I've unfortunately been the first for many teachers, counselors and therapists and they constantly tell me I"m more involved then most parents and I sit and think what else can I do.
What scares me the most is reading these stories and wondering what lies ahead for my kids when they enter middle school/high school. I"m not going to lie, moving to the country and homeschooling has crossed my mind more then once.
OH and to top it off, I want to be a midwife, which is wierd. Apparently I just want to stare at lady bits all day -.-
sometimes people get way under my skin.
The part about he "secret clubs" and library made me upset. They should have dealt with the aggressors, not the victims. Why deny rights to people who did nothing wrong?Kids can be brutal.There was a kid who'd spit on his lunch every day. Our house was egged. They stole things from him. He had friends but they were just as intimidated as he was. At the high school, they had "secret" clubs that kids who were bullied could join to get out of lunch. My son opted to go to the library every day instead and that worked for him. My son plays three instruments. He joined marching band his freshman year and loved it. He also joined jazz band and was in Wind Ensemble. Those activities opened up opportunities where he got to go to Disney World and play at Carnegie Hall. What really turned things around for him, though, was when another kid who was in the early childhood program invited him to go to a youth group meeting at their church. It's the same faith we are so we let him go. He formed close friendships with those kids. They are still his closest friends to this day. He also got a part time job his sophomore year that helped him. There are two books I read that really inspired me and helped me cope with all of it. They were both written by economist Dr Thomas Sowell, whose son was a late talker. The books are called "Late Talking Children" and "The Einstein Syndrome."
They should have dealt with the aggressors, not the victims. Why deny rights to people who did nothing wrong?
The part about he "secret clubs" and library made me upset. They should have dealt with the aggressors, not the victims. Why deny rights to people who did nothing wrong?