Ly&Pigs said:
Last night my son was making fun of me because I can't run anymore. It hurt me so deeply.
Ah... That has got to be a killer. Your heart wants to do all the things that "so called" normal people do, but your body just won't let you. I know that has to be so painful for you. Especially when you have children and as parents we always try to put their needs above our's. -- Do I remember correctly, you have two children? How old are they?
Ly&Pigs said:
Her husband doesn't sound as supportive as he should or could be. I had a difficult time when I first was diagnosed, it's hard to deal with a diagnosis such as this.
It is so important to have a supportive person in your life when you are going through rough times. Patricia's husband is "no" support at all? Patricia is a gorgeous woman, and a journalist. She has always been a very strong person in their relationship. I believe that now that she is needing her husband to lean on.... he is feeling rather displaced. He refuses to go to counseling however. My other friend who has MS for over 20 years has so much support from her husband and family, (husband is a surgeon). Both ladies live in the same neighborhood, but what a contrast.
Ly&Pigs said:
And as for the slurring of words, I have been there many times. It's not easy to cope with at times.
I can only *imagine* what it would be like to want to have full command of your body, and it not respond to you properly. The good thing is that you seem to bounce back rather quickly.
Ly&Pigs said:
I am having problems getting my records from Texas so the VA won't give me any medications except for nortriptyline which helps the nerve pain in my legs some and helps to prevent some of my migraines.
The *bureaucracy* in medical, insurance, and government is harmful to the well being of the patients. It can be an uphill struggle in *fighting* for your health rights. It is difficult enough for a person who isn't chronically ill, but the burden on the patients who desperately need help are often the ones who do not have the *strength* to fight. It is very frustrating. I have dealt with this for over 20 years with my daughter and her bone disease. I have organized groups in California to help patients who do not have support people, people who can do the fighting for them.
The system is all messed up. I wish you luck Ly.
My slogan is.... "Scream until you are heard."
Ly&Pigs said:
In addition to the MS, I have severe osteoporosis, migraine disorder and am starting to become borderline diabetic.
Aw Geez Ly. If MS wasn't enough!!!!
You have tried the Sumatrptans, ie. Imitrex, and Zomig?
Zomig is the better of the two. Just make *certain* that you do NOT have a hidden heart condition. I took Zomig and had a cardiac spasm. Four years later, (which was last year) I had to have a heart ablation to correct atrial fibrillation.
What are you going for PT with your MS? Do you find swimming helpful?
Wow... Sorry, this is so long.